r/eds
Ehlers-Danlos Syndrome Open Discussion Forum
Founded November 2009 · Public — anyone can post
Ehlers Danlos Syndrome (EDS) is a underdiagnosed connective tissue disorder characterized by a genetic fault in collagen. It manifests as hypermobile joints and affects every organ system because we’re all made of connective tissue! We welcome all EDS subtypes, hypermobility spectrum disorder, Loeys Dietz, unnamed genetic disorders that present like EDS, self-diagnosed & suspected zebras. || || || Crowdsourced medical care saves lives. We welcome medical advice!
Members
35,766
36K
Online now
—
not captured in the last snapshot
Posts per day
16.4
from the last 100 posts, spanning 6.0 days
Comments per post
—
no sample yet
Growth · 7d
—
not enough history yet
Growth · 30d
+3.4%
+1.2K members · ≈36d
Promo tolerance
—
not assessed yet
Last post
Oct 18
sampled Oct 18
Distinct posters
97%
of the last 100 posts
Tracking since Sep 11 · growth spans are the real distance between snapshots, not rounded windows. Posts/day is measured from the community’s own newest posts on Reddit, not from what Prowlo happens to crawl.
Member growth
Similar by content
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r/eds — frequently asked
How many members does r/eds have?
r/eds has 35,766 members as of our most recent crawl on Oct 18. Prowlo re-checks tracked communities on a rolling schedule, so this figure moves rather than sitting frozen at whatever it was when a scraper last ran.
Is r/eds growing?
Over the last ≈36 days r/eds changed by +3.4% — a gain of 1.2K members. We compare against the nearest snapshot we actually hold and state the real span rather than rounding it to a clean "30 days".
How active is r/eds?
Around 16.4 posts per day, measured from the newest 100 posts on Reddit, which span 6.0 days. Posting rate matters more than subscriber count when you're deciding where to spend your time — it determines how long your comment stays visible.
When was r/eds created?
r/eds was founded in November 2009 and is a public — anyone can post community. Age matters: an older community with steady growth has survived Reddit's moderation churn; a young one with a spike may not.
Who posts in r/eds?
Of the last 100 posts we sampled, 97% came from distinct accounts; the newest was published Oct 18. A low share means a feed dominated by a handful of accounts (bots, mods, or one prolific poster) rather than a community.
Can I promote my product in r/eds?
We don't have a promo-tolerance read for r/eds yet. Default to the safe approach: read the sidebar rules, contribute in threads where you gain nothing, and mention your product only when it is the honest answer to someone's question.
How do I monitor r/eds for mentions?
Hit Watch on this page. Prowlo starts crawling r/eds into your Dataset — every new post indexed and embedded, searchable semantically, queryable by your AI agent over MCP, and able to trigger keyword alerts in Slack. Prowlo is read-only; it never posts on your behalf.
Can my AI agent read r/eds's stats?
Yes. Everything on this page is one MCP tool call away: catalog_get_subreddit returns r/eds's members, growth, promo tolerance and similar communities as typed JSON — free, no credits. Connect your agent to api.prowlo.com/mcp and it can vet the community and start watching it in the same conversation.
Read-only · Human-in-the-loop
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